LAHORE: Participants at a seminar held on Saturday to mark International Thalassemia Day highlighted the need to raise awareness among the public, healthcare providers and policy makers to improve the lives of patients suffering from the disease in the whole world.
The seminar was organized by the Thalassemia Federation of Pakistan (TFP), in collaboration with the Fatimid Foundation, Lahore and the Institute for Research and Prevention of Thalassemia and Other Genetic Diseases, Punjab, on Saturday at the Fatimid Center from Lahore.
Since 1994, the International Thalassemia Federation (TIF) has organized various activities every year on the occasion of International Thalassemia Day, May 8, to promote actions for the prevention, management or treatment of the disease. patient-centered.
The retired administrator of the Fatimid Foundation, Colonel Iftikhar Haider Naqvi, highlighted the contribution of non-governmental organizations (NGOs) in improving services provided to thalassemia patients and their families in the country.
Director General of the Thalassemia Institute, Dr Hussain Jafri, said it is the most common hereditary disease in Pakistan and more than 6,000 affected children are born with thalassemia major in the country each year. .
He said psychosocial interventions play a vital role in preventing genetic disorders, adding that the institute provides comprehensive preventive services in Punjab free of charge.
Former Minister of Health and Secretary General of the TFP, Dr Yasmin Rashid, says thalassemia can be prevented by following in the footsteps of countries like Italy, Cyprus and Iran, which had either completely brought the disease under control , or significantly reduces the birth of babies with thalassemia major.
She said the theme for this year’s International Thalassemia Day is “Be Aware, Share, Care: Working with the global community to improve knowledge about thalassemia”.
She stressed the need to promote awareness of thalassemia and its global impact and to share essential information and knowledge to support the best possible care of those affected. She added that understanding the condition was crucial for its effective treatment.
Posted in Dawn, May 8, 2022